Vision Dynamics at AER

Vision Dynamics had the pleasure of attending the AER Regional Conference in Boston this past weekend. The mission of AER is to support professionals who provide education and rehabilitation services to people with visual impairments, offering professional development opportunities, publications, and public advocacy.

AER's membership consists of a very diverse group, including administrators, vision rehabilitation therapists, orientation and mobility specialists, low vision therapists, itinerant teachers, and support personnel, who work with infants, children and teens, adults, seniors and veterans. Whatever the specialty, all AER members are committed to the principle that blind and visually impaired persons have unique needs which require specialized services delivered by trained individuals.

We had a flurry of people stopping at our booth eager to gather as much information about our adaptive technology so they could bring their knowledge back to those they serve. Our well staffed and energetic booth made an impact on many.

Charlie spoke on Saturday and inspired many with his positive outlook as he shared his own personal experiences and walked them through a few interactive exercises. He was able to tap into the strategies needed to deal with a vision impairment as an individual who can relate through his own trials and tribulations as well as his successes. Charlie had the ability to help educators be more in tuned with what kids might be thinking about there visual struggles and gave them tools to use to be more successful on their journey. Being diagnosed at such a young age and going through so many life changes, Charlies experiences with his own visual challenges was an inspiration to many. His energetic and compassionate personality allowed his message to be heard in a way that everyone could relate to.

Thanks so much to those that came and participated. We hope that we were able to help you solve some of your struggles. We would also like to thank those of you who stopped by our booth and continue to visit us at our store, online and a special thanks to all our verbal ambassadors.

What will you choose?

"My diagnosis still hadn't sunk in...I didn't want to tell my family that I learned I'd be blind within a matter of years. I don't think I am ready to accept it myself."

Like most individuals that are newly blind or those that have a vision impairment, showing some signs of shock and denial to their vision loss is common. According to the American Foundation for the Blind, "ten million people in the United States are blind or visually impaired." The major eye conditions are Cataracts, Macular Degeneration, Glaucoma, and Diabetic Retinopathy.

There are many stages that a person may go through, when they find out that their life is going to change because of a visual diagnosis. Usually, shock and denial come first. Patients may become overwhelmed on hearing the news for the first time that they are losing their sight or may become blind. It can take their breath away. They may say "I can see just fine and I'm not going blind." They may even leave the appointment and not tell anyone. Self-pity and anger may come next. "Why me? What have I done to deserve this? Am I a bad person?" A patient may als0 become very isolated during this phase and stop doing activities that they once loved to participate in. This type of negative thinking can lead to the depression stage. They may have a feeling of despair and worthlessness as well as helplessness. At this point it is important for them to talk to someone so they don't give up or feel completely alone. Sometimes seeking professional help or searching out a support group is a helpful option. If at this point they are ready to move a step out of their despair and find a glimmer of hope then they are ready for the reassessment stage. Here is where they can evaluate their situation and try to move forward. Maybe by talking and sharing their experience with others they are able to examine their life and find meaning and realize they are not alone. Others too have felt the same way and have been able to move on and live happy successful lives. Some changes needed to take place and a new vision had to be seen but it's possible. With this kind of open mind and hopeful attitude they may be ready for the coping stage where they will go out and find information on ways to help them live with a visual impairment. They may reach out to their Doctor, support group, or family which leads to the final stage of acceptance. This is where the real healing can begin. Here the patients hopefully will gain some hope, self-confidence, and self-worth and begin to have and understanding with his/her vision loss and move towards a happy and productive way of life.

Having a positive attitude will impact people that are blind or visually impaired. Disability must be perceived as a challenge rather then a weakness. The key to ridding yourself of a bad attitude of helplessness is to clear your mind of all negative inner conversations and replace them with more hopeful messages. It is important to have a positive inner dialogue. While it is true that feeling of anger, resentment and helplessness are normal, it is best to move forward so that your physical debilitation does not override your mental and emotional faculties as well.

Do you see the glass half empty or half full? Those that go through life with a negative attitude will find it more difficult to find happiness. On the other hand, those that have a positive attitude will be able to find some happiness, much more successfully, in living every day. Losing vision or becoming blind is a hard thing to go through but with the right outlook you can go through this challenge. We all have a choice on how we deal with things that happen to us. Are we going to choose self-pity and not live life to our fullest potential or are we going to choose to live no matter what happens and focus on all the possibilities out there. Sometimes overcoming a traumatic experience and moving forward gives us a sense of accomplishment and triumph. Learning a new way of life can stimulate the brain and opens up a whole new and exciting way of life and shows us there is never a dull moment. I would rather learn a new way to live than be stuck in a hole of self-pity and pain. Remember, it's a choice.

What will you choose?

Vision Education

Hey friends! We want to tell you about an exciting and fun opportunity to learn about low vision and maintaining healthy vision at any stage. Vision loss affects many people at all stages of their lives but it does not need to be death sentence. We here at vision dynamics understand and have a light-hearted but successful approach to managing your eye condition. Not only are we knowledgeable but we can also relate because some of us are visually impaired our selves. So sharpen your minds bring a smile and mark your calendars for classes that will inspire and inform. These 2 one session classes are available to those who are struggling with their vision or family members and friends who would like to learn more.
The dates for these classes are as follows
1st Class:
When: Wednesday October 5Th from 7pm to 9pm
Where: Vision Dynamics
470 West Main Street
Cheshire, CT 06410
Course Name: What is low vision and do I have it?
Description: This one time workshop will discuss changing vision and when it becomes low vision. The staff at Vision Dynamics along with a low vision specialist will explain what low vision is and how it can be helped. Many people with Macular Degeneration, Diabetic Retinopothy, Glaucoma or even Cataracts aren't aware of what their condition is or how it will impact their life. Others are just having a little trouble reading the newspaper and could use some help. This program will talk about these conditions and what services and tools are available to help keep your independence and a quality of life. Join us for an evening of hope and laughter as we "Learn to see again".
2ND Class:
When: Thursday October 27Th from 7pm to 9pm
Where: Vision Dynamics
470 West Main Street
Cheshire, CT 06410
Course Name: Maintaining Healthy Vision at an stage
Description: This is a one time class that will explore ways to keep your vision healthy. The staff at Vision Dynamics will present a variety of approaches to healthy eating, exercise, sun protection and a good attitude. Whether your vision is perfect or impaired, everyone can improve the health of the vision they currently have. New research has exploded with information about food and vitamins that can be helpful in maintaining vision. Learn recipes, strategies and tools that can help make a difference.
Registration is through Cheshire Adult Ed 203-250-2450
Website: http://www.cheshire.k12.ct.us/adulted/defaulthtml
Be prepared to have a new vision and don't forget to bring your sense of humor. We like to laugh at Vision Dynamics. Remember, we don't see with our eyes we see with our brains. Can't wait to see you in October!

Summer Air Travel

Summer seems to be a time for travel and for those with low vision or who are legally blind this can be a challenge. Airports present many obstacles to passengers traveling with a visual impairment. It is hard enough for a sited person to maneuver through a crowded airport and to stand in line to be patted down be some stranger with bad breath and an attitude. It can also be an adventure trying to board a plane with everyone trying to stuff there baggage into the overhead compartments squished together like a can of sardines. There is no such thing as personal space when boarding a plane. For someone who is totally blind and traveling with a seeing-eye dog or a cane, it is obvious that they may need some assistance. Those with low vision on the other hand, have to do a bit more asking, be more organized an get to the airport earlier than most. It is not fun knowing your plane is about to take off and you are running towards the gate not being able to read the signs, even though they can be quite large, praying that you are headed in the right direction. Planning ahead of time is the best way to save yourself from headaches and unwanted stress that can be a voided with a few phone calls and some simple steps.

• Read about your destination and plan out what sights you will want to visit and contact those places to see if they offer special services. Pre purchase tickets if possible for parks and attractions.


• Research accomodations. Foreign destinations are likely to have different accomodations and services from your home city or town. Prepare yourself by researching your trip before you plan your travels.


• Make reservations whenever possible. Call the airline and ask about assistance and tell them your are visually impaired. Give them as much information as possible and let them know what you will need, (preboarding, luggage help, connecting to your next flight). Also let them know if you have a guide dog. Ask about seating arrangements, special meals, and shuttle and driving services. Some airlines allow trained service dogs to sit in the cabin. Continental and Delta are two airlines that will.


• If you are meeting an airline representative or transportation company let them know what you look like and what you are wearing.


• Plan for quide-dog restrictions. Some countries and states such as Hawaii either do not allow guide dogs for short visits or have quarentine requirements. Call your local guide-dog school for information on restrictions.


• Carry written directions with you. Have them written down before leaving. Even if you can't read them you can ask for help by showing then to someone else if you get lost. It's also helpfu to have a copy of the exact addrss of where you are going. A driver may not know where a specific hotel is, especially if there are several with the same name.


• Bring helpful technology with you such as a monocular, handheld magnifier, or mini video magnifier.


• Keep necessities with you at all times. Carry your money, keys, tickets and passes in a pocket. If you happen to misplace your purse or wallet or someone takes it, you can still reach your destination. Keep some extra money handy for tips.


• Notify others about your needs. Inform those around you about your visual limitation. Ask questions. If you can't see a monitor or find a gate at the airport ask a customer service representative or another traveler to help you find your way.


• CARRY your cane. Whether you choose to use it or not for mobility puposes, your cane helps to identify others that you are visually impaired.


• Ask about amusement park or other tourist discounts. Some of the amusement parks give discounts either to visually impaired visitors or to their sighted guides.


• If you do bring a suitcase, remember its type and color. It may be helpful to putt a colorful piece of ribbon or a sticker to help you or anyone assisting you with easy identification.


• Enhance your sensory experience by going on tours and visiting gift shops. Some tour groups allow travelers who are visually impaired to experience an exibit by tuching objects that are off limits to others. Gift shops often sell dmall cale replicas of monuments you can touch.

Remember that travel is supposed to be an adventure and exciting so take your time and enjoy all you can even if everything does not go exactly as planned. Happy Travels!

Questions to ask your Doctor when your vision changes.

At some point in our lives we all have an obstacle to overcome. For some of us the obstacle is changes to or loss of our vision that alter how we deal with our daily activities. This can be overwhelming and a bit scary. It often leaves us feeling somewhat hopeless and fearful for our future, but that does not have to be our only feeling. There are some steps that can be taken and questions to ask that can help us see a new way to deal with our diagnosis and bring us to a feeling of hope.

You have just found out that your vision is not what it used to be an you schedule an appointment with your Ophthalmologist. A good dialogue with your doctor is key to understanding what your risk factors are for certain eye conditions and to determining the best course of action to take. There are some very important questions to ask to help decide the next step.
On Risk Factors

• Do I have any risk factors for eye disease (age, ethnicity, family history, etc.) ?
  


• If I'm at risk for certain eye conditions, what can I do to lower or manage that risk

On Symptoms

• What's causing my vision changes or symptoms?
  


• Are my vision changes a normal part of aging, or could they be a sign of something more serious?



• Will my vision problems get worse?
  


• What can I do to correct or manage my eye or vision problems?

On Eye Tests

• Based on my symptoms and risk factors, which eye tests should I receive and how often?
  


• Did my eye exam or test results reveal any changes in my vision since my last eye exam? What d0 those changes mean?
  


• Do I need additional testing, and if so, when should I come back for that, and how should I prepare?
  


• Are there any potential side effects or risks posed by the eye tests I'll be receiving?
  

On Treatments

• What are the treatment options for my vision loss or eye problems?
  


• What are the possible side effects or risks involved in the treatment you recommend?
  


• Are there any medications I should avoid, given my eye condition?
  


• What habits should I adopt to help protect my eyes and reduce my risk of disease?
  


• What else can I do to protect my remaining vision?
  


• Are there any product on the market that can help me?

Before you walk away

• Asked all your question? Great! Now, before you walk away, make sure you understand all the answers, and ask more questions if you don't. Understanding the information your doctor shares helps establish an effective working partnership with your eye doctor. Working together, your can take key steps toward maintaining good vision and reducing your risk for serious eye problems down the road.

One thing to be aware of is that not all Ophthalmologist have the answer. There are those times you may hear "there is nothing else that can be done". That may not be true. If your doctor has not mentioned a Low Vision Specialist or Adaptive Technology, then you may want to look into those options. Some Doctors are uninformed and have helped you to the best of their ability. There are many products on the market today that can enhance your quality of life and allow you to live as independently as possible. As a patient we need to take charge of our care and move forward to see what we can do instead of sitting on the sidelines focusing on what we have lost.

Hope this information helps as a guideline to getting started on your journey into a different way of life.